Sunday, July 19, 2020

5am Toe Nudge


5am… I got the toe nudge.  One of the few things Jonathan can still voluntarily move.  I rolled over and asked if he needed suction.  No.  Hand repositioning?  No.  Leg bag emptied?  No.  Forehead scratched?  No.  Tubing condensation drained?  No.  I got the toe nudge again. I was coming up with nothing.  Suction?  No.  I turned on Jonathan’s computer so he could tell me what was up.  

This was the message I got:
"I have a bee in my bonnet.”

Neat.  We’ve been asleep for 4.5 suction interrupted hours.  Kill the bee and go back to sleep.

The message wasn’t complete:
“I think we should go to church together as a family today.  I’m feeling pretty good.  Let’s do it.”

The all consuming feeling of ~UGH~ fell over me.  With a twinge of anger and a bigger twinge of ~oh my heck I’m so tired he can’t be serious~  We haven’t all been to 9am church since Corona hit 4 months ago and never lugging the vent.

I looked over at his face being illuminated by his computer screen in the dark, and there was that Jonathan grin.  That really super huge Jonathan grin.  The man wasn’t just serious, he was set on the idea and that bee was headed to church.  I had 3.5 hours to execute.  Sweet merriweather I had to get cracking.

I pulled myself up and started the morning time routine with one eye barely open and a grumpy brow.  Suction, cough assist, stomach vent, tube feed water, vent disconnect, neck brace, transfer to chair, reconnect vent, shave, brush teeth, shower prep, disconnect vent, remove inner cannula, shower stoma guard, neck brace and then transfer to shower… it was at that point that I looked at this grinning man and realized A)He really is feeling better, and, B)Some things NEVER change.  He has been dragging me around for almost 20 years.  He is tenacious as heck. And my heart softened as I looked at my companion and was overcome with gratitude that my man has still got it.  I have dreaded millions of his ideas and EVERY SINGLE TIME the angst eventually passes and I find myself filled with gratitude that he was born with gumption.  Though often dreaded, I’ve learned to trust his judgement on life’s moments to seize.

So I kept clipping along and got Jonathan ready for church, then started on myself and the rest of the tribe... a little less furrow in my brow now.

We got everyone out the door with only one screaming and refusing to wear shoes.  I had to pat myself on the back getting all nine of us and a vent to church before 9am.  By 4pm I was in a near coma, but we did it.

Church was amazing.  Great precaution was used in the act of gathering a semi-large group and I knew we did the right thing.

Today, I am simply thankful for the beekeeper by my side.


Thursday, July 16, 2020

Neowise Comet

We went swimming as a family this afternoon with some friends.  While it was wonderful to be out and about on a hot summer afternoon, it pulled at my heart to have Jonathan sitting on the sidelines as an onlooker.  Once a lifeguard, member of the high school swim team, and extreme lover of water I knew he would give anything to take a dip.  I asked him if it hurt his heart, and as usual he said he was fine - no self pity.  Willing to watch while the rest of us played.

Tonight after family prayer and scripture study Jonathan mentioned that we would probably be able to see the comet in the night sky.  We all piled outside to gaze upward.  I am proud to say that I was the wife-extrodinaire that spotted the comet in the night sky.  We all used binoculars to focus in on the comet and see the long trail of light following after it.  I tried desperately to get the binoculars to focus for Jonathan.  We tried with and without his glasses and moved and focused and tried subtle tilts to allow him to see the comet.  It wasn't working.

Swimming and the majesty of the sky are in this man's soul.  I wanted him to at least have a taste of them.  0 for 2 is not a winning day in my mind.  The tribe slowly trickled back inside and I went after my camera and tripod.  I petitioned the heavens to help me get a picture of the comet for the man that I love, and then I climbed on top of the motorhome.  The comet was disappearing between trees and rooftops, but I got a picture to share with him.


Neowise Comet
Big Dipper

Jupiter