We met with Dr Schaumburg on Thursday. What an absolutely terrific man. If you are going to do something in life, do it like this man and do it well. He spent over an hour with us just soaking up understanding and disseminating knowledge. What a good and remarkable man. Kiddos, let it be heard from the mouth of your mama, whatever you do, do it well. Essentially, we came home with the reality that trach time is here. Anytime now, is the right time. I'm processing that. That reality brings some highs and lows.
For now, this is a snapshot of us headed to the Pulmonologist in Portland. It was a brutal drive for Jonathan. His head support didn’t arrive when it was supposed to from our medical equipment company. So amidst my efforts to tether his head he bounced around violently all 9 hours and needed a heavy dose of ibuprofen when we got home. This is us in a really long van with no children to occupy the separating seats. You can barely see that good man back there.
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